ACP Status Collection for LAU

Projects
Active?:	active
Program:	CC and Med
Requestor:	Dr. Dan Roberts
Collection start:	2025-03-15
Collection end:	2025-04-13

this needs to be reverted to the version at the end of the LAU collection.

• SMW

• Cargo

• Categories

This dataset contains data in support of the LAU Collection Project and regular data collection for both ICU and medicine programs. A similar dataset was previously collected as ACP Status Collection in ICU.

ACP status affects care decisions (and sometimes indecision) and therefore Length Of Stay and also outflow pathways.

Data Collection

For any record collected, enter the initial status on admission and the first change to ACP status.

For the initial PTA (prior to admission) status, use the ACP status if documented anywhere.

For the first change, use the first change to ACP status entry by a physician). Collect these if they are documented by a physician in writing. We only want deliberately discussed changes to goals of care or plan, not pre-terminal switches to comfort care. That is, do not enter a situation where a pt is deteriorating quickly and the patient is changed to ACP C or in ICU and they withdraw care as a ACP status change.

Do not collect multiple changes in the ACP status during the course of their hospitalization only as directed above.

Data Entry Instructions

For every new record, the project records with an entry of "not entered" will be automatically generated.

Update that line to one of the following:

• Project: ACP initial
  • Items:
    • not yet entered (automatic entry)
    • ACP-C
    • ACP-M
    • ACP-R
    • not documented
  • Date/Time, Checkbox, Integer, Real: not used

• Project: ACP first change
  • Items:
    • not yet entered (automatic entry)
    • ACP-C
    • ACP-M
    • ACP-R
    • no change
• Date/Time: dttm of the status decision, or blank if "no change"
  • if decision was made before admission, use the first service/admit dttm
  • if a time is not available, enter 12:00
  • if the ACP last status is the same as the ACP first status, enter the same ACP status as the first, and use the same dttm as the first ACP.
  • if the ACP last status is different than ACP first status, enter the last documented ACP Status and the dttm that it was changed, you do not need another ACP last entry.
• Comment (optional): If there are multiple ACP status changes/family discussions that are affecting the LOS or seem unusual, leave this as a comment in the "Q" column, NOT the notes section
• Checkbox, Integer, Real: not used

Sources

• ACP form
• Admission sheets
• Progress notes
• If a patient arrives from another facility, or transferred from another ward/service with an ACP status already documented use that as the first ACP status and the dttm would be the same as the first service dttm

About the data

• For the LAU Collection Project, every patient in our sample had a ACP done by the end of their stay. This was confirmed with the data collector. Likely related to these patients being elderly. There might be a policy at the sites, we have not investigated this. Documenting this because it raised questions on initial data analysis .

Data Use

This data is being collected as a current state for LAU Collection Project.

Consistency Checks

Data Integrity Checks (automatic list)

	App	Status
Query check ACP Status Collection	CCMDB.accdb	implemented

Log

• 2025-06-24 reverted this page to the LAU version and created new page ACP Status Collection to contain substantially changed collection and data documentation
• 2025-06-16 LK, TT, DR met and discussed; LK updated this page
• 2025-03-15 - 2025-04-13: collection of data for LAUs as part of LAU Collection Project
• 2025-03-06 - discussed with DR if we should use the same dataset and definitions as for ACP Status Collection in ICU ; we don't need the source or the M+/- distinction, but we do want the first and last ACP as we did for that project.
• 2025-06-10 added to S tmp table for regular data collection

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